Your privacy is extremely important to us and we would like to outline exactly how thisisGO.ie handles data and information.
You can learn more about the origins of this platform here: About us – thisisGO
The short version is that a team from University College Dublin,
in conjunction with the Irish Cancer Society, has led the gathering of
substantial content and worked with an Irish software company, Full
Circuit, to put this information together in a way that should be
helpful for those impacted by a gynaecological cancer. We started with
information on cervical cancer and hope to add content for more cancers
soon. The design and lay-out of the platform was created following
extensive consultation with patient public involvement groups and
healthcare professionals.
The type of information and content available ranges from very
detailed academic papers on treatments to more practical advice, such as
how to prepare for an overnight in hospital.
The bullet points:
- You can choose to create a ‘profile’ but do not have to do so to access articles.
- If you do create a profile, we request the minimum amount of data required.
- That minimum amount of data is stored securely on Microsoft Azure, one of the world’s leading cloud storage providers.
- We do not share your information with any third party other than our software support team who use the information purely for maintaining the platform itself.
- We will never request personal medical information.
- thisisGO is not a medical or clinical tool and if you have any concerns about your own health you should contact your health professional.
- We will not contact you via email or any other communication channel
unless it is to re-set your password or another platform related
matter.
What is MyProfile?
You can choose to create a ‘profile’ on thisisGO.ie. The purpose of the profile is to:
- provide you with relevant articles and content quickly
- allow you to bookmark articles you may want to re-visit and keep track of what you have read or viewed before
What information do we ask for in creating a profile? And why?
We ask for the following:
First name – so we can say ‘Hello Jane’ on your profile and your registration confirmation email, nothing more.
Your email – this is your ‘log in’. As you set a password (which is encrypted, meaning we can never see it), your email allows you to re-set your password should you forget it for some reason. Upon creating a profile you should receive an email confirmation to the email you entered. If you want to use a ‘temporary’ email, such as from mailinator.com or a similar service, that is up to you.
Status – we ask you to select a ‘status’ from a short-list:
- Concerned but not diagnosed
- Recently diagnose
- Surveillance: treatment complete
- Recurrence
- Partner
Your ‘status’ is a platform setting only. The status determines
what articles and topics are recommended to you upon creating a
profile.
We use the status setting to help you navigate the massive amount of content available. There are over 130 articles, videos, podcasts and documents on thisisGO.ie and that number will only grow.
You can see an example above. This is the standard landing page upon selecting a profile status ‘Concerned but not diagnosed’. As you can see the ‘box’ contents differs from a profile status ‘Recurrence’ below:
The recommended ‘Topics’ and ‘Quick Links’ are different.
Having a profile also means you can ‘Bookmark’ anything you read or view and find again at a later date.
There is a ‘search’ function so you can search key phrases or words.
Age – we ask you to enter a number for your age. It is up to you as
to what to enter here. Again, we ask so we can present more relevant
information as some content is more relevant to older users, some to
younger. We do not use the number entered for any other purpose.
What is the platform?
thisisGO.ie is about providing information. The information provided on the website is not specific to individual people and does not replace the advice of trained medical practitioners. The platform is not a medical platform and plays no role in any specific medical or clinical process.
The only information we gather from you is about how you use the platform and not about “you” personally. We are only interested in information that helps us make the platform better for you and other users – what we call general statistics.
General statistics are collected through Google Analytics and this information includes things like new versus repeat users, most popular pages etc.. The general statistics help us to make the website as useful as possible for all users.
If you do create a profile, we request the minimum amount of data required. That minimum amount of data is stored securely on Microsoft Azure, one of the world’s leading cloud storage providers and is stored in the European Economic Area which means you enjoy all the protections and rights the GDPR provides. We do not share your information with any third party other than our software support team in Full Circuit who use the information purely for maintaining and updating the platform itself.
We will never request personal medical information.
Do we share information?
Your personal information will only be shared with selected third party service providers, contracted by thisisGO to assist with our operations. Your information will not be shared with any other organisation, other than with your permission, or where required by law.
We do not share personal information with any other third party.
We share summarised versions of the general statistics with the Irish
Cancer Society so that it can assist in the improvement of this
platform and help in the design of future similar platforms for other
cancers.
Other sites and cookies
thisisGO.ie has several videos
from third party sources. We try to use Vimeo for hosting where possible
but in some cases YouTube must be used. You will see from our cookie
consent details that YouTube does use its own cookies so you may need to
accept YouTube’s cookies to view a video.
Still have questions?
If you have any questions about privacy – including a data access request – you can email gdpr@thisisgo.ie at any time.
Our formal privacy policy can be found here: Privacy Policy – thisisGO
Terms and conditions for the user of My Profile can be found here: Terms & Conditions
